Monday, January 22, 2007

50,000 Mile Turnover

You know that point where everything has had to be replaced on your car, and so even though it's old and obnoxious, it is at the same time new and reliable again?

I hope we're at that point. Scott had to take him to the stupid ER again last night to get the g-button put back in. Hopefully, all the parts are fresh now and likely to last a little while.

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At 2:32 AM, Blogger Ctelblog said...

Whoa! That's some bad luck. ER twice in a few days. What sort of gtube does he have and what happened to the button? My boy has had his for eighteen months and it's ok so far (apart from when they try to put suspension meds down it and it blocks).

At 8:00 AM, Anonymous Anonymous said...

"im gonna boo him" "BOOOOOOOOO"

(im booing the ER, just fyi)
i love you guys if you need anything please let me know, even if its just a babysitter. im right up the street. i love u.


At 11:16 AM, Blogger Thomas, as told to Sarah said...

Ctel, the g-tube and button we have is an open gastostromy with the Mickey extension set pictured down the page at this location. It had been red and irritated and sticking off of his belly (not flush as it should be) and then it fell out.

Scott, the Equipment Whisperer, tried to get our replacement one back in, but he finally just stuck a straw in it and took the baby downtown. Sigh.

Nothing compared to chemo emergencies, I am fully aware. Just minor headaches.

At 1:28 AM, Blogger Ctelblog said...

Thanks for that. We have heard of these types of gtbue but never seen them. The boy ended up with a Percutaneous Endoscope Gastrostomy (PEG) which is way less sophis but does have a langer shelf life (important since his chances of having it removed are nil at present).

It can be seen here:


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