Thursday, February 22, 2007

Context, Part II

The part about Thomas's status (see Part I) is the important part. If that's in place, we can do anything else. There's a lot of the else, though.

We are dealing with the every day-ness of life with the trach and the tube. Thomas is getting to be a really active, social fellow, and right now we're trying to figure out how to help him play with other kids more. It's been hard to fit extras around Thomas's and Scott's doctor appointments, our collective month-long cold, and Scott's (improving) weakness. We recently found out about the coolest ministry ever, which means we may see a little more of life outside the house soon.

Money-wise, things are ...interesting. In the beginning of all of this, we were overwhelmed donations and diapers*, and we managed to go almost a year on a quarter of the pay we had had before. These days, I'm working full-time. Thomas won't be able to go to day care until his trach is out, so Scott is home until he returns to teaching in the fall. M-a-y-b-e the trach will be out by then? We hope so.

We are figuring out the work thing - Scott's wrist issues obviously slowed us down a bit. We were getting panicky, trying to plan through to August. The last month or so, however, brought a modest bump in donations, and we re-engineered a couple of the bills. We are also running one last set of fundraisers - we're auctioning off a few of the dozens of quilts we received for Thomas. I'll let Scott introduce that ebay deal tomorrow. (I know our readers have already donated the heck out of themselves, so this is just a heads up in case you know some quilt lovers who'd like to bid.)

Anyway, I've been thinking about this year - in a little over a week it will be exactly one year since I walked in for Thomas's checkup and ended up on the neur-onc floor. I never would have dreamed that we could have survived this. Some days I'm not sure we did. I feel like someone who drowned in a flood, but then was been pulled out and resuccitated. I am alive, but my heart beats so fast when it rains.

It's been sunny this last week, though, literally and figuratively. Scott's getting better. Thomas is excellent, if snot-riddled in a typical-toddler-cold kind of way. He finally really needs a bath each night because he gets so dirty doing all his important toddler business. I look at him toddling around behind his push-toy, and I think, no, we're not there yet, but we are pulling through.

* We actually just ran out of diapers donated by the Jasper High School English Department. Thanks once again with big hugs to Mrs. Zellner and all the kids and teachers who stuffed my Civic full - three times! - with diapers!

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At 2:27 PM, Anonymous Anonymous said...

yay for cool ministries!
yay for everything getting better!

let me know asap about the quilts! i'm excited to tell all my friends about it!!


At 7:32 PM, Blogger jenidipndots said...

My husband and I used to attend that church, and the volunteers there are wonderful people. Your son will have a blast and be well taken care of!

At 6:22 AM, Blogger FunkyMonkeyJunk said...


I'm so glad to hear that the "new normal" is giving you some peace. Although because of different circumstances, I understand the breath of relief you sigh and yet how quickly fear can grip a heart. God is good. Life might not be all the time, but God is good.


At 9:32 AM, Anonymous Anonymous said...

Ditto on the Yay's...Just being able to go outside more now makes everything better.
I'm glad Scott's getting better and you've had lots of good news lately.
I am not a fan of new realities, they suck big time, and I don't want to give crappy new realities any credit... but mine have made me realize how every day is incredible. I know we can't change what has happened in our lives, but you know better than anyone that each day is a blessing.
I'm sounding like Yoda...I'm going to go now.

At 7:56 AM, Blogger dalene said...

Love you Baby Thomas, Sarah and Scott. Love and Hugs - "Auntie Day"


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