Wednesday, March 21, 2007

New Dilemma

A lot of people have been asking me what having the trach out means. I'm not sure how to answer this. I can't really remember having a baby without a trach.

So far, the biggest and most fun differences hit at night. Until now, Thomas had been wearing a cap over his trach in the daytime. It forced air up through his larynx -- kind of training wheels for breathing on his own. Using the cap helped him learn to swallow his secretions like you and I do and enabled him to really talk. At night, though, he slept with just a bib over the opening (to create humidity) and a little plastic guard (to give air room to get in).

Clearing his throat with just the guard/bib on was a lot harder, so sometimes Thomas would let secretions sit in his trachea 'til they started lowering his oxygenation levels. Other times he'd pull the bib off and the air would dry up his secretions until they were all crusty inside the trach, blocking his air passage.

The upshot here is that sleeping was complicated for everybody. One of us (Scott, me, or my dear darling mother) slept in his room at all times so that we could suction any blockages or change the trach if need be. It also meant that, once the cap was off after bathtime, Thomas couldn't really talk.

So anyway, I had thought that when the trach came off, we'd get a ton more sleep right away. Totally not true. For the first few nights, he just kept waking himself up. I imagine it went something like this:

Thomas: ZZZZZ ZZZZZZ huh huh uhlo?
Thomas: (in head) sleeping...talks in sleep ... What was that!!!??

Thomas: Uhuh? Aha! AHHHHHHHH wahhhhhHHH!
Thomas: (in head) Man, who's being so loud? That's waking me up!

Thomas: AAMMMAAAA!!!!!!MA!!!!!!!!
Thomas: (in head) Backup! I need backup!

Not that this was waking me up, exactly. I kept going in to check on him. He was so quiet. I'd always been able to hear him breathing, but now I can't unless I get really close.

I can certainly hear him crying, though. Man. The fun thing is, though, after he's done with his "I don't want to go to bed now" crying, he talks himself down. And by talks to himself, I mean talks to his feet. He lays on his back and puts his feet in the air and talks emphatically to them. And by talks, I mean, "Aba wa baba MA baba awa rararara (singing) Bay-ii ba!"

It's so hard to decide what I want more - him to sleep and us to rest, or me to run in and kiss all his little toes.

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At 6:35 AM, Blogger Ctelblog said...

Sleep first, toes second.

At 7:33 AM, Anonymous Anonymous said...

KISS The TOES! lol.

(okay, i realize sleep is important and all, but those little toes are too cute)


At 10:41 AM, Blogger Thomas, as told to Sarah said...

These first two comments, considering the sources, make me laugh.

I'll be honest, I chose sleep.


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