Monday, April 28, 2008

Today, on Grouch News

My favorite all-time Sesame Street sketch (yes, I have one) features Anderson Cooper from CNN. He's the reporter for the Grouch News Network, and he's got two Grouch talking heads on - Dan Rathernot and Walter Crank-ite. The schtick goes like this:

Cooper: Would you like to comment on this breaking news story, Dan Rathernot?

Rathernot [in grouchy voice]: I'd rather not.

Cooper: Walter Crankite?

Crankite: Bleuurrrgggghhhh.

And so on. Those are the only things they say. It's hi-larious to me, even though Thomas doesn't really get it.

This week, I've been trying to give our family members and friends a picture of where we are in Thomas's struggle. I don't know what to say. Can I explain how, despite the fact that there are no outward changes, we think he's gotten a lot worse over the last week? I'd rather not. What is there to say about his pain increasing exponentially each day? Bleuurrrgggghhhh.

I don't know where we are. But it's dark, and it stinks.


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12 Comments:

At 2:12 PM, Anonymous Anonymous said...

im sorry. wish i could fix it. lots of love.

-rachel

 
At 4:30 PM, Blogger don't eat alone said...

Sarah,

There's not a day that goes by that I don't think of and pray for you and Thomas. As I read your post, I went back to a poem I read on another blog today by Clarissa Pinkola Estes:

Refuse to fall down.
If you cannot refuse to fall down,
refuse to stay down.
If you cannot refuse to stay down,
lift your heart toward heaven,
and like a hungry beggar,
ask that it be filled,
and it will be filled.

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You may be pushed down.
You may be kept from rising.
But no one can keep you from lifting
your heart toward heaven -- only you.

It is in the midst of misery
that so much becomes clear.
The one who says
nothing good came of this,
is not yet listening.

There aren't enough words to carry enough light for you, I know. But I keep praying.

Peace,
Milton

 
At 4:31 PM, Blogger don't eat alone said...

This comment has been removed by a blog administrator.

 
At 6:53 AM, Blogger Jana said...

I'm so sorry, Sarah. Thinking of you.

 
At 9:46 AM, Blogger April B. said...

You all are in my thoughts and prayers.

 
At 11:21 AM, Anonymous Anonymous said...

I wish I could come give you all a hug again. I don't think I did that enough when I was there. I love you all! *hugs you big*
Aunt Tonjia

 
At 3:08 PM, Anonymous Anonymous said...

no words......just good and happy thoughts sent across the sky and surrounding your family in this suck-y time.
Lindsay

 
At 2:19 AM, Blogger Ctelblog said...

Ay, the insideness of the changes is hard. Keep on keeping on.

 
At 1:11 PM, Blogger Steph R said...

I am so sorry. I am thinking about yall and I know how trite this sounds, but I wish there was something we could do. We love yall...
-Stephanie

 
At 5:52 PM, Blogger Carol said...

You should be a writer!! I always look forward to your posts and updates on your son. Sending prayers and asking my own little angel to watch over you and Thomas.

 
At 10:55 AM, Blogger Shalom said...

I found my way here via Gordon, and simply wanted to thank you for your words on his blog. As is probably appropriate, I don't have many words of my own except to offer my prayers. Peace to you.

 
At 7:51 PM, Blogger Scott Bickle said...

I like that Sesame Street too. I think me Thomas share the same favorite. It's R.E.M. Singing "Furry Happy Monsters." It's a really fun song to dance to.

If you would like to watch it here is link.
http://www.youtube.com/watch?v=zkHM8xG6i8o

 

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