Thursday, July 31, 2008

Sad News

I have something sad to tell you.

We lost Thomas this afternoon.

He died in his dad's arms. He was not in pain.

He'd had a very, very exhausting day and night and morning of wet, depressed breathing, but he hadn't really been alert since bedtime last night.

These are the last three things Thomas did: the "hey, look at me, I've got a humungous bowl on my head" joke for his hospice nurse on Tuesday, and then last night, he woke up to watch Blue's clues and to wave at Steve and Blue. And then he gave his dada kisses before bedtime.

Today, we held him for a long time. We told him lots of good things, and sang to him, and held him some more.


Read more!

52 Comments:

At 8:45 PM, Anonymous Anonymous said...

Sarah, I am so sad and at a loss for words. Summer's phone call broke my heart. We are in the middle of arranging flights for Summer and Chris. My love to you and Scott. Please give Mallory a special hug from Caleb's Nan. YOur precious angel Thomas is in heaven and was greeted by Caleb, I know. You and Scott are being lifted up in Little Rock.
My love, Judy

 
At 8:45 PM, Anonymous Lindsay Adams said...

may peace somehow find a way to wrap around you all...
I can not even begin to put into words how sorry I am for this loss.

 
At 8:54 PM, Blogger April & Geoff said...

This comment has been removed by the author.

 
At 9:15 PM, Blogger Chris said...

I am so, so sorry. My prayers are with you and Scott. May peace be with you.

 
At 9:34 PM, Blogger BP said...

My prayers go to you and your family. Thank you for sharing Thomas with your Luv Field SWA family. I'm just glad, I got to met him in person.

 
At 9:48 PM, Anonymous Jamie said...

Scott, I am a friend of your mother and have followed your family's journey from diagnosis day thru today when Ronee called with the news. I had no words to comfort her. We hung up, & I shed tears of sadness, pain, and just the unfairness of it all. I was a little surprised I was so overcome with emotion for a little boy that I had never met, but then I realized I did know Thomas and that empty space in my heart was real. Sarah, I can't find the right words to comfort you and Scott, but I do want to thank you so very much for introducing me to Thomas through your posts. Sarah, your gift allowed me to meet a precious little boy and to get to know a little bit about his awesome parents at the same time. Thank you both for the precious gift...

 
At 10:56 PM, Blogger Mrs. Kensington said...

I am so, so sorry and so, so broken hearted for you and for the world that has lost something special and bright today. I can't even say for sure how I came to your page in the first place but I have been following for some time. I want you to know that I don't think I will ever forget this blog or Thomas. Thank you for letting us get to know your son.

 
At 1:06 AM, Anonymous sarah said...

Oh, Sarah, I am so sorry.

 
At 3:06 AM, Blogger Wormwood's Doxy said...

This is so heartbreaking...

Prayers ascending for you and your family, Sarah. May Thomas rest in peace and rise in glory, and may the Holy Spirit give you strength and comfort in the days to come.

Pax,
Doxy

 
At 3:48 AM, Blogger don't eat alone said...

Sarah

I don't have words other than I love you and my heart hurts. What an amazing life you gave your little boy. What he knew most about living was the way you loved him.

Peace
Milton

 
At 4:00 AM, Anonymous Anonymous said...

I love you two. I'm doing everything I can to get there , I"ll know more later this after noon. I'm sooo sorry. Just hold each other and pretend I'm hugging you till I get there to do it in person.
Aunt Tonjia

 
At 5:36 AM, Anonymous Amber said...

Sarah and Scott,
All I can say is I love you guys and if you need anything please don't hesitate to call - Love

Amber

 
At 6:22 AM, Blogger Carol said...

I am so sorry. Thank you for sharing Thomas' story. You and your husband are amazing parents. Your love for Thomas and your bravery through this journey have touched many hearts. May your happy memories of Thomas and your faith in God comfort you and your family during this very sad time.

 
At 6:22 AM, Blogger Carolyn said...

Oh Sweetie I'm so sorry. Please let me know if there is anything i an do for y'all here in Waco.

 
At 6:22 AM, Blogger Flakymn said...

I have been introduced to your story through a friend. I am so sorry for your loss. I am searching for words of comfort but know that only our Lord can bring those in a time like this. My thoughts and prayers are with your family.

 
At 6:47 AM, Blogger Jonathan Ridenour said...

Scott and Sarah,
I wish I was there to give you a hug. I can't say anything now. We will be there on Monday.

 
At 7:09 AM, Anonymous Nana to 14 said...

I can't comprehend your pain, but I'm taking you to One that can via my prayers. My heart aches with you for your incredible loss.

The last few days as I've prayed for you knowing Thomas' time was near, I've felt such a peace realizing Thomas would be having his new heavenly well body soon. I guess because I've had a new grandson recently I keep envisioning Thomas being 'born' into heaven with his new wonderful healthy body.

I'm envisioning him from your post about dancin' ~ but without any reservations, laughing, dancing and joyous ~ free from the bondage of that dreadful tumor. Maybe even enjoying a heavenly cookie or two! Thank you for letting us share the gift of Thomas'journey here.

 
At 7:10 AM, Anonymous Dee said...

Hearts are aching - Sarah and Scott for your loss. You and Scott and Thomas have touched so many lives. Your sorrow is great. All of you fought so hard to do what you had to do. I love you and Scott so very much. And Thomas - he lives on forever!

 
At 7:27 AM, Blogger Kristin (kekis) said...

I am a friend of Chuck & Trish, and have been following Thomas' story for a long time now. I am so sorry for your loss, and I know that no words I say will make sense of all of this or make it better.

In the past twelve hours, I have learned that a few people I know also know you. Everyone is holding you up in prayer right now and sending you love to surround you in your grief.

Thomas made such an impact on so many people - people you will probably never know. His strength, beauty, smile, and humor will continue to rest in all of us. Blessings and peace to all of you.

 
At 8:11 AM, Blogger Lan said...

Sarah and Scott, I cannot put into words how heart broken I am for your loss. Us here at the office and my family are keeping you and Scott in our thoughts. Thank you for having the strength to post this wonderful blog for us all. May peace find you in this time of sorrow.

 
At 8:17 AM, Anonymous Anonymous said...

Sarah--My heart is broken for you and Scott. I'm Summer's Gran and she has kept me informed about Thomas' condition. I cried and prayed last night as I read your blog and looked at the wonderful pictures of your precious little boy. As Judy said, there are no words that we can speak to ease your pain and sorrow, but our heavenly Father knows and He will hold you securely in his loving hands.
With love from Summer's Gran

 
At 10:14 AM, Blogger Lynn said...

Sarah and Scott,
Words cannot express the sadness I feel for you all now. Thomas was such a blessing to read about, all his funny things. I felt I knew him too, through this blog. Loved the fact that he had to wave to Blue and Steve, the 2yr old in him was still there.
May Thomas' Memory be Eternal,
Lynn

 
At 10:18 AM, Anonymous Jesse Bicknell said...

Sara and Scott,
Like everyone else that has commented, I've been profoundly touched by Thomas' life and with the way you two have been so brave and graceful with everything that has come your way.
I'm touched and so saddened by today's post. Thank you both for sharing your time with Thomas. It has brightened many of my days and given others a strong dose of sadness. You've helped me in ways that I can't fully articulate.


When you are sorrowful look again in your heart, and you shall see that in truth you are weeping for that which has been your delight. - Kahlil Gibran

 
At 11:26 AM, Blogger Jayne said...

I have followed your story since RLP shared it on his blog. I am so very sorry to hear about the loss of Thomas. May the Lord's warmth and peace surround you and your family during this time and may light perpetual shine upon sweet Thomas forevermore.

 
At 11:34 AM, Blogger krueth said...

I am so sorry for your loss. I have followed your story for a while. I am praying for you. Wendy

 
At 12:11 PM, Blogger Steph R said...

Oh Sarah and Scott. I am so sorry. I am so sorry. I love you both.

 
At 12:39 PM, Blogger Jillski said...

Sarah & Scott,
Please know that there is a whole community of people that are praying for you while you grieve. You have blessed our lives by sharing your son and his journey. Perhaps we can bless your lives now in return. We lift you up and ask for peace.

 
At 1:18 PM, Anonymous Anonymous said...

I was introduced to Thomas's story through a friend and there are lots of us here whose hearts are breaking for you. Thank you for sharing your journey and his life with us. There is an ache in my heart I didn't know was possible to have for someone I've never met. You and Scott will continue to be in my thoughts and prayers.

 
At 2:02 PM, Blogger Rach said...

My prayesr are with you. I will pray for your continued peace and courage. I am so sad that Thomas has left our world behind to go on to Heaven. But I know of the promise it has; he is happy there, he will wait for you, and he will hurt NO MORE.

I am deeply sorry for your loss.

The Cox Family
Toledo, Ohio

 
At 3:50 PM, Blogger Jenn said...

I am so incredibly sorry for your loss. May peace find you.

 
At 4:41 PM, Blogger April & Geoff said...

My thoughts and prayers are with you guys. So many have been touched and impacted by Thomas' journey and yours. May you find peace within this difficult time.

 
At 6:15 PM, Blogger Sara said...

So Sorry For Your Loss. It Seems You Were Prepared For It As Much As You Could Be But Its Still So Hard. I Found Your Blog Through Rhonda, And I Know Your Whole Family And Support Group Is Saddened Xoxo

 
At 6:26 PM, Blogger Monkey Momma said...

Sarah and Scott,

I am so broken to hear this. So very, very sorry. May peace overwhelm your souls.

Andi

 
At 6:35 PM, Blogger Karrie said...

I was friends with Jason and Shelia at 1st Richardson. I am so incredibly sorry for your loss. Your family is in my prayers.

God bless,
Karrie

 
At 7:11 PM, Anonymous Anonymous said...

Sarah and Scott,
There are no words I can offer, so instead I offer love and prayer. I pray that you are surrounded by all of those that love you and allow their love to embrace you. Thank you for sharing your story, your son and your journey so openly.

May God bless you and keep you now and forever.

Monica

 
At 7:44 PM, Anonymous Kacy said...

Sarah I am Kacy Hiser, I went to school and graduated with Scott. I now live in Illinois and found out about your son from my sister Niki. I am so very sorry for your loss please let Scott know that both of you are in my heart and prayers, I am not sure of any words that can help you, but please know if yall need anything from me just let me know. May the Lord watch over you and help you with your grief. Love yall.

 
At 8:08 PM, Anonymous Anonymous said...

Dearest Scott and Sarah,
I am a friend of Jason and Shelia's and have been praying for your family since they shared your son's story with us. I will continue to pray for you now and ask God to comfort you. I am so sorry for your loss.
God Bless, Laure

 
At 10:19 AM, Blogger Lizard said...

Sarah and Scott-we stand with you in your pain...Oh how I wish I could be there.

Liz and Andrew Barna

 
At 1:38 PM, Anonymous Anonymous said...

I'm so sorry for your loss. May each day get a little brighter. Thomas is no longer in pain and is finally free.

 
At 2:35 PM, Anonymous ameliajake said...

Thinking of you in Indiana . . .

 
At 3:02 PM, Anonymous Anonymous said...

Peace to you and your family. May you find comfort in remembering his smile and beautiful eyes. -Cheryl & Jason Mitchell

 
At 4:21 PM, Anonymous pottermom said...

So sorry on your loss. Heartfelt prayers from Houston.

 
At 8:08 PM, Blogger kate5kiwis said...

sarah,
big love to you all.
kate and family X

 
At 9:15 PM, Anonymous Anonymous said...

Sarah and Scott, I have been checking up on Thomas via this website for a while now. Even though I knew this was coming, it still comes as a shock. Thomas has touched many people in his too short lifetime, and we are all better for it.
Love,
Sheree - one of his first nurses(when he was 6 months old) at CMC in the ICU

 
At 9:22 PM, Blogger Thomas, as told to Sarah said...

So, I just said I wasn't going to respond, but Sheree, we think of you all the time. You were ...I just can't tell you. You showing us how to find Thomas under all those wires and tubes meant the world to us.

 
At 11:41 PM, Anonymous Jody Rowe Harris said...

Sarah & Scott, Our hearts ache with you. Thank you for sharing Thomas and this incredible journey of love with us. We lift you in prayer always.
God Bless,
Nanaw, Uncle Bill, Aunt Jody & Family, Shannon & Family, Kevin & Family, Uncle Johnny & Family

 
At 9:54 AM, Blogger Michelle D said...

Sarah, I'm heartbroken for you and Scott... We are thinking of you here, every day and always praying.

Hugs,
Michelle

 
At 5:17 PM, Anonymous Michelle said...

I am SO sorry for your family and Thomas, but please be reminded that he is looked after by a very special person now, Jesus. And Thomas be standing beside Him and waiting for you when you complete your journey here before you enter the beautiful gates of Heaven. I am a hospice nurse and have been blessed to ready your blog. I cannot describe my degree of sorrow for you, but you were absolutely awesome and blessed to be the parents of such a special child who touched the hearts of many here in Texas and beyond. May God bless you with his riches and continued blessings. Michelle

 
At 12:52 AM, Anonymous Anonymous said...

Scott and Sarah,
I am so sorry. You both are in my thoughts and prayers.

Angie Voss

 
At 6:58 PM, Blogger Jerome said...

I've followed your blog for a few years now and this is by far the toughest post to swallow. Thomas seemed so full of life it was easy to forget he was sick. You all gave him a very exciting time on this earth - should we all be so lucky!

Never forget that although he's not physically with you, he'll always be by your side.

 
At 9:11 PM, Blogger Paula said...

I've checked in so many times, but thru some error in my link, I've only just now seen this post. I'm so at a loss for words. I'm so very sorry for your loss. It just shouldn't be this way. I pray for peace for you both and for all who knew and will always love Thomas.

 
At 7:03 PM, Anonymous Anonymous said...

My name is Andrew Wagner.I was a student of mr. Bickles's for a breif period of time at hendrick middle school. I was reminded of you and your son the other day and I remembered this blog. I was very sad to find out about Thomas. Our prayers are still with you.

 

Post a Comment

<< Home